My family is participating in the Kansas City Energy For Life Walkathon on Sept 15th to raise awareness and support for mitochondrial disease. And I am here to ask you to help us raise some of the green stuff to fund research and support.
Why are we walking? This last year, we met a fun family in our homeschool and 4H groups with a young daughter with mitochondrial disease. She is a sweet little girl with a really not sweet prognosis. For her, her family, and all the other families dealing with this disease, we decided, as a family, to enter the Energy for Life Walkathon and raise some money. If Delaney can keep her little body going without the energy-makers in her cells functioning completely, even I can find the energy to WALK.
Here are some FAQs about Mito.
What is mitochondrial disease?
Mitochondria exist in nearly every cell of the human body, producing 90 percent of the energy the body needs to function. In a person with mitochondrial disease, the mitochondria are failing and cannot adequately convert food and oxygen into life sustaining energy.
What is the prognosis for these individuals?
Currently, there are no treatments for children and adults with mitochondrial disease. Although some of the affected children and adults are living fairly normal lives with the disease, many people are severely affected, and many children do not survive their teenage years.
How many individuals are affected?
Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10. While exact numbers of children and adults suffering from mitochondrial diseases are hard to determine because so many people who suffer are frequently misdiagnosed, researchers
believe the disease is approaching the frequency of childhood cancers.
So, we are lacing up our shoes and getting ready to walk 3K as a family on Team Delaney! We’ve set a family goal of raising $300 — individual goals of $50.
Donating is easy! Just click on here to go to the donation website. For “last name” type in “Hacking.” All 6 of us will be listed. Feel free to donate to any of us. We’re in this as a team.
There are two bonuses to donating:
1. You will learn my real name. Is it Charlotte? Charlene? Charla? Charlize? Charles? Or is really just Charlie and I’m trying to trick you into clicking? You won’t know unless you check it out…
2. We will be using fabric markers to write out donors’ names on our tshirts. So when we walk, you walk. Well, your name walks.
So please, take a minute and consider donating.